Blog | Impact Health Sharing

How Healthcare Sharing Handles Rare or High-Cost Treatments

Written by Impact Health Sharing | Jan 22, 2026 3:14:21 PM

When people first explore healthcare sharing, one of the most common—and important—questions is this:

“What happens if something really serious happens?”

From cancer diagnoses to rare autoimmune conditions or long-term therapies like multiple sclerosis (MS) treatments, high-cost medical needs can feel overwhelming. Understanding how healthcare sharing handles these situations can help you plan confidently and avoid surprises.

Here’s what to know about how healthcare sharing works when rare or high-cost treatments arise—and how to prepare financially.

How Healthcare Sharing Approaches Major Medical Needs

Healthcare sharing is built on a community-based model. Instead of paying premiums to an insurance company, members share one another’s eligible medical expenses according to established guidelines.

When a major or long-term condition arises, the process generally involves:

  • Pre-notification and care coordination
  • Eligibility review based on guidelines
  • Ongoing sharing for related medical needs

For many members, this approach offers transparency, flexibility, and a sense of support during difficult seasons of life.

What Happens When a Long-Term or High-Cost Condition Is Diagnosed?

 

Step 1: Early Communication Is Key

When a serious diagnosis occurs—such as cancer, MS, or another chronic condition—members should notify Impact Health Sharing as early as possible. This allows the Member Services team to help coordinate next steps and clarify how sharing applies.

Step 2: Eligibility Is Reviewed by Medical Need

Healthcare sharing does not operate on a one-size-fits-all system. Instead, medical needs are reviewed against the program’s guidelines, which outline what is eligible for sharing and under what circumstances.

This review may include eligible medical services such as hospitalizations, surgeries, physician visits, and diagnostic testing, as outlined in the guidelines. Clear communication upfront helps members understand what to expect as care progresses.

Step 3: Related Medical Bills are Reviewed as They Occur

For conditions that require ongoing or long-term care, healthcare sharing does not treat all future treatment as a single, open-ended event. Instead, each medical bill is reviewed individually to determine whether it meets the program’s eligibility guidelines.

As care continues, members may submit bills for related services—such as follow-up appointments, additional testing, or continued treatment—and those bills are considered for sharing based on the guidelines in effect at the time, including annual member responsibility, co-share amounts, and any applicable limits.

This approach allows members to continue receiving care while ensuring that each medical need is evaluated consistently and transparently.

How Are Rare Conditions or Specialty Treatments Handled?

Rare diseases and specialty therapies—such as infusion drugs or advanced biologics—can be costly, regardless of the care model. In healthcare sharing:

  • Treatments are reviewed for eligibility based on medical necessity
  • Some therapies may require pre-eligibility or documentation
  • Members may work closely with providers to identify cost-effective care options

This approach may encourage greater transparency around pricing and treatment decisions, particularly when members coordinate care directly with providers.

Financial Planning Strategies for High-Cost Medical Scenarios

Healthcare sharing is an alternative approach to managing medical expenses, and financial planning plays an important role in how members prepare for high-cost care.

1. Understand Your Annual Personal Responsibility Amount (PRA)

Your PRA (similar to a deductible) plays a role in how costs are shared. Knowing this number—and planning for it—can prevent financial stress later.

2. Build a Dedicated Medical Emergency Fund

Even with sharing, having savings set aside for unexpected or non-shareable expenses provides peace of mind.

3. Ask About Provider Discounts

Many healthcare sharing organizations actively work with providers to help reduce medical costs for their members. This may include negotiating charges or repricing bills to align with fair market rates, then walking you through what happens next and what your final responsibility may be.

In addition, some hospitals and doctors offer discounted rates for self-pay patients—costs that may be eligible for sharing or reimbursement, depending on your program’s guidelines. The most important step is to contact your sharing organization in advance so you understand your options and can plan with confidence.

Impact Health Sharing takes care of the referenced-based repricing for its members so you don't have to. Learn more here.

4. Review Guidelines Regularly

Healthcare sharing guidelines can evolve. Reviewing them regularly ensures you stay informed and can plan accordingly.

Why Many Members Value Healthcare Sharing During Serious Illness

For some members, the biggest difference isn’t just financial; it’s relational.

Healthcare sharing emphasizes:

  • Personal responsibility
  • Community support
  • Transparency in healthcare decisions

Some members say they value the increased visibility into healthcare costs and decisions that can come with a healthcare sharing model.

Frequently Asked Questions (FAQs)

 

Does healthcare sharing cover cancer treatment?

Since healthcare sharing is not insurance, it does not cover medical expenses. Healthcare sharing programs may share eligible medical bills related to cancer treatment if they meet the program’s guidelines. Members are responsible for notifying the program and submitting bills so eligibility, limits, and sharing requirements can be reviewed.

What about chronic conditions like multiple sclerosis (MS)?

Chronic or long-term conditions, such as multiple sclerosis, are evaluated based on healthcare sharing guidelines. Each medical bill related to ongoing treatment is reviewed individually to determine whether it is eligible for sharing.

Are there lifetime caps in healthcare sharing?

Some healthcare sharing programs do not use lifetime caps commonly found in health insurance plans. However, sharing is subject to program-specific limits, eligibility rules, and guidelines that apply to each submitted medical bill.

Can I use my current doctors for high-cost treatments?

In many cases, yes. Healthcare sharing often allows flexibility in provider choice, though members may benefit from discussing options that help manage costs effectively.

How can I prepare financially for a serious diagnosis?

Financial preparation may include understanding the program’s annual member responsibility, reviewing sharing guidelines, setting aside savings for medical expenses, and discussing self-pay or discounted pricing with healthcare providers.

Planning with Confidence

Rare or high-cost medical conditions can be life-altering—but understanding how healthcare sharing works helps remove uncertainty from the equation.

Impact Health Sharing is structured to help members share eligible medical expenses for both routine and serious healthcare needs, according to established guidelines.

 

Have questions about how healthcare sharing might work for your specific situation?
👉 Schedule a call with Impact Health Sharing today to explore your options and plan with confidence.